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Brain

Brain

Doctors say…

1) No change from my last MRI. (expected)

The most recent MRI from last week showed the tumor was exactly the same as the last MRI 2 months ago. I have a “slow growing” tumor so this was what they expect to see. They won’t really know if the radiation worked for another year or so. No growth is good growth.

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Brain

over!

My Linda and I were talking about if I were to ever write a book, the title would be:
….and then…

My life is drama. It is one thing after another, then another, oh wait….and then another. ER visits, health scares, behavior issues, Dr. appt’s, brokeness, it keeps coming. Is this the average life? Really? Because I am pretty sure if you are a new friend, and either found this blog or heard about all this, you would slowly back away. Possibly with a fire extinguisher in hand. I don’t blame you! Just know with all the scary stuff are unmatched blessings that make us smile, remind us we are loved and protected, and keep us not scared. Moving on. Actually, lets pause here, I am giving you fair warning, this post is erratic and as good as it’s going to get. Sadly it’s taken 2 weeks to publish this draft.

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Brain

Half way update!

Do I celebrate? Or tuck myself in bed and call it a day? Content with chips and sparkling water…Crazy headaches, nausea, exhaustion, and generally not feeling too hot has taken up residency. I am on steroids now, and they have helped the headaches in a big way. Now I will inherit fat face, which comes free gift with steroids. What a deal;)  Along with, well…

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Brain

Holly-woooooood!

8 treatments down…22 to go! Can’t hide it, Hollywood is growing on me. There is always a story. Friday, two old grown men got into fight. On our shuttle. No punching, but for real threats. (the one guy talks in his sleep.  He never stops.) Awkward hour drive back. Today, we are waiting for a lady on the shuttle and I overhear a very large man screaming on his cell phone, “No man, I am going to sue them people for a billion dollars. Yeh man, NO SOFT TISSUE. They just did the MRA an hour ago. Yeh man, they are going down. I am going to take them for 20 billion dollars, easy. Yah, I said 30 billion. 30! NO SOFT TISSUE!!!” This ensued for the next 10 minutes. I just wanted to ask him what he decided he was going to sue for: 1 billion or 50? And what is an MRA? Thankfully homeboy wasn’t on my bus. 

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Brain

Making Lemonade

Last week we took care of some housekeeping in terms of radiation. Who knew there were 25 steps?! 3 appts later, my eye lash smashing mask was made. Chad couldn’t help himself and had to try on someone’s discard. 🙂 My start date was pushed back from the 22nd to the 27th. The doctors are planning/ mapping out the actual radiation and it’s more complicated than they initially thought. NO HURRY. (Pretty please get it right?) There are 3 areas with all different depths, measurements and radii. I am so thankful they are not rushing through this delicate step. They are having me recieve treatments in LA. 5 days a week for 6 weeks. 30 trips to LA and back. Be thankful, be thankful, be thankful. Apparently, there is only one machine that can do what they need it to do. Her name is trilogy. I found comfort in the beginning of her name as my trust is in the triune God of the universe. No coincidence there.

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