Category: Brain

  • more boring updates

    Doc cleared me to sleep normal and lift Halle. Thank you praying friends! The fluid is still there, so Doc says walk 60 minutes a day, and we can give up on the sleeping like a lunatic, and not lifting my baby since that did no good. We will revisit the fluid issue in a few weeks.

    What an answer to prayer to finally be able to be a RESTED, functional mommy. Thank you Lord. 
    I came off the steroids and crazy headaches returned, so back on the ‘roids I go. Also the discomfort and exhaustion comes and goes. Seriously think I would need 4 padded walls if it wasn’t for scripture and pain medicine. Thank you sweet friends for asking about me, and caring.  I know this post is a snoozer, but I want you all to be encouraged, God is responding, and I am thankful for your supplications.
  • Brain-Schmaime.

    Brain-Schmaime.

    Updated MRI, my new baseline….

    So that is what is left. Eek. Compared to this I will count my blessings. When I see this picture, I will admit, I get discouraged. I hoped more of it would be gone. The good news is it is significantly smaller, so praise God for that. And considering how it all went down in surgery, Dr. literally could not get one more piece of it, I was bleeding so bad, so that helps me have a peace about it. So I will thank God for allowing it to all go down the way it did and trust God will give me what I can handle, and we can just watch it, and I won’t have to have another surgery or have any brain/ headache issues.
    Friday’s appt was a smashing good time. I got half my staples out (yay for showers!!), got cleared to drive-YES!!! and effectively refused the scale. 🙂 Not so smashing part is I STILL can’t lift anything, which is killing me. I can’t play with or really effectively care for my little people and it is grating on me, not going to sugar coat it. There is spinal fluid trapped in my head, thus causing the problem of having to be upright 24 hours a day-and no lifting. So if you are a praying friend, I will kindly ask you to pray the fluid would drain naturally and quickly so I can get back to normal and play mommy again? Also, please pray for stamina. I am coming off the steroids, and I am feeling a lot more discomfort and much weaker than I was these last few weeks. Also mentally, not feeling as sharp, which scares me. Please pray that would not be permanent. I can’t really afford to get much dumber. Neither can Chad. 😉 Thank you sweet friends.
  • Oh Happy Day.

    I am in still in utter shock, as the things we pray for and entrust to Him are just like that, taken care of. Our good God has blessed us yet again. Results are in….Stage 1, benign, NO ABNORMAL markers. The tumor did test positive for progesterone receptors, which explains the massive and quick growth at the end of pregnancy. Unfortunately, this means another baby would jeopordize my health, so numero 4 may be outta the picture. Something to be praying about, also something to be praising God for. I am so thankful I feel like there is at least an answer to all this.  You never know how news like this will feel until you really think through how opposite the news could be, and what those implications are. To really think through leaving my family was not cool. This chickadee is praising God for salvation from this trial. Also my eternal salvation, the fact I am His child and He cares for me has gotten us through this year with joy. I wouldn’t trade this for the world.
    Anyway. The whole reason for this post is to THANK you, each and every one of you who has offered up a supplication, prayer on my/ our behalf. I know God hears, He answers and supplies us with all that we need for this life, without fail.

    Again I say to you, if two of you agree on earth about anything they ask, it will be done for them by my Father in Heaven. For where there are two or three gathered in my name, there I am among them.
    -Matthew 18:19-20

    We are so immensly blessed by each of you, you will never know how your love and support has carried us through this time. Each time I stop and think how we are so loved and cared for, tears start streaming-it is highly emotional. We just can’t thank you enough. So praise God for His good and perfect gifts that come in the form of you. xoxo

  • Post op update

    Well, I am here, alive and kicking. 🙂 I can’t help but praise God for all the ways He cares for me. Once again, He is outdoing Himself through the many mercies and acts of kindness He is showering on me. How foolish of me to doubt he would flawlessly carry me/ us through again? His grace is overwhelming, and I am thankful to understand that in a personal way. I certainly don’t deserve this awesome of a recovery, but I will take it. A big thank you to all who are caring for me, my sweet husband Chad, our AMAZINGLY sacrificial parents, our WONDERFUL church and friends. Neighbors, everyone….the love is pouring in and I am SO thankful this recovery has been what is has. The days are long, but that is because of my brain relearning everything, and having to think through all the things we don’t normally think through. It just takes longer to do stuff, I get worn out in 10 minutes, repeat. The anemia is frustrating but I am eating my spinach….like in bulk. It is good.  Bring it Popeye. Each day is getting better. Today we even went to the park for a couple hours. It was kind of miraculous actually. Considering where I was 2 weeks post op the last time.
    This week has been interesting. Halle decided to cut her 1st tooth. Of all the weeks, this is the one she decided she needed to join the club, no sleep and all. Also, neighbor has decided to to jackhammer for the week. He has removed all the old stone, (floor to ceiling), and installing 1×2 inch pebbles instead. REALLY. I made sure to let him know it was cool, I was on drugs. Boys have been truly awesome little men. They are QUIET, good listeners and are my treasures. This is Chad’s last week home, so I am reflecting on what a gift this time has been, He has done a stellar job wearing both our hats. So thankful he is mine.
    Looking forward to getting the pathology report next Friday, getting the raunchy staples out, and moving on. Thank you for your sweet prayers, thought, notes, meals, and love-they have all truly meant the world to us.

  • Home please.

    Home please.

    What better to do be doing than be home on my first full night from Villa al Kaiser? Writing. That is right people. Yep. The house is asleep and I am just SO thankful to be home!!!  I feel like I need to get this all off my chest as I will probably forget all the details in the next few days. So excited in fact I can’t wait to write to all of you who have been faithfully loving on me and my family and PRAYING for us, showering us with sweet reminders/ scriptures and just your support. How do I ever thank you? Seriously?!  When going through something like this,  you never know how you feel, or what kinds of wierd things go through your brains and fancy parts. Lonliness is one thing I am so thankful I do not feel. Not one bit. I feel so covered by loved ones, and and by everyone who just took the time to encourage me, so thank you for making this time a blessing for me.

    So I guess we did need to do something about that booger.


    The Surgery itself was a lot more than what we anticipated. It was quite scary coming out and having this be 180 degrees different than the last surgery. Recovery and everything…Yek.
    Starting out, we were told the tumor rests on my venus/ sinus cavity (not facial cavity) where all the blood flows into the brain. After asking some questions we realized early Friday morning, there was going to be a remnant left as it is extremely risky to do anything involving the sinus/ venus. Bummer. It was ok though because my Lord was guiding His hands and was/ isn’t going to allow anything to go down without His stamp of approval. So about 3.5-4 hours in to the surgery, I started to bleed, and bleed and bleed. 6 blood transfusions later, YES 6!? They were able to stop the bleeding and get me back to good. Praise God. This was a really scary time for the anesthsiologists because while they were prepared, they weren’t that prepared for 1 if any transfusions.  I later found out sweet Barbara, the nurse practioner, was in the room, and praying for me. …Bless this woman, I love her to pieces. She was praying for me at that critical moment, and had a crazy vision of Jesus working through my Doc’s hands. Strangely enough, the ONLY thing I remember from surgery was the Holy Spirit pushing me up stairs. No idea how I knew it was the HS, or what, that is all I remember. So when we shared our stories, we cried like good mama’s and realized how important the power of prayer is, but mainly what an ever present help God is when we are in trouble. We are so quick to dismiss it, do it later, or whenever we have time to lock ourselves in a closet, but we have a Lord who asks us to talk to Him. And my prayer is through this we will all scoot closer to our Savior, desiring that sweet communion. I know this is single handedly the area I have always struggled with, so  for me, I am really appreciating His timing in all this, and what all our good God is revealing to me.

    Recovery has been really really hard. Not going to lie. I have been super sick on the meds, not breathing right They want your breaths to be 8-10/ min, but were only 2-6-but God has graciously pulled me through each hooplah and I am sitting in my own bed. Miraculous! I am SUPER anemic, due to (where you really paying attention?) So I am weak, nauseous, dizzy, weak, etc. But I am one happy mama. I can walk! I can not do any housework, cleaning, picking up anything, but I think we all know I am not shedding tears over a dirty house. So thankful to have my family,  best friends, and little people here in one room.

    As for what is next….we wait for the biospies to come back. We were told the last biopsies came back at a grade 1 benign with abnormal markers, if there are abnormalities this time, it would most likely be considered a stage 2, and there would need to be more aggressive resection of the tumor. Gamma knife, radiation, or chemo. We need prayer that they would be benign and have no abnormalities, and that I would be able to heal and be a mommy and wife again and not to be a leach to society!! Also please pray for my husband and he leads us through this recovery. That he would do so on God’s strength and that he would be renewed and refreshed each day. We are a lotta work and the man never complains. For reals. 🙂

    Thank you friends for walking with me along this road. xo