Last week we took care of some housekeeping in terms of radiation. Who knew there were 25 steps?! 3 appts later, my eye lash smashing mask was made. Chad couldn’t help himself and had to try on someone’s discard. 🙂 My start date was pushed back from the 22nd to the 27th. The doctors are planning/ mapping out the actual radiation and it’s more complicated than they initially thought. NO HURRY. (Pretty please get it right?) There are 3 areas with all different depths, measurements and radii. I am so thankful they are not rushing through this delicate step. They are having me recieve treatments in LA. 5 days a week for 6 weeks. 30 trips to LA and back. Be thankful, be thankful, be thankful. Apparently, there is only one machine that can do what they need it to do. Her name is trilogy. I found comfort in the beginning of her name as my trust is in the triune God of the universe. No coincidence there.
Category: Brain
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Why Blog?
There are chapters of life where there are peaks and chapters filled with valleys. And then there lies all that is in between. We all own this reality.
Ecclesiastes chapter 3:1-8 affirms this truth.
1 For everything there is a season, and a time for every matter under heaven:
2 a time to be born, and a time to die;
a time to plant, and a time to pluck up what is planted;
3 a time to kill, and a time to heal;
a time to break down, and a time to build up;
4 a time to weep, and a time to laugh;
a time to mourn, and a time to dance;
5 a time to cast away stones, and a time to gather stones together;
a time to embrace, and a time to refrain from embracing;
6 a time to seek, and a time to lose;
a time to keep, and a time to cast away;
7 a time to tear, and a time to sew;
a time to keep silence, and a time to speak;
8 a time to love, and a time to hate;
a time for war, and a time for peace. -
next chapter
Just a warning, this is a boring post. If you are here for drama, feel free to wander away. I had my 3 doctor appts this last week. And the week before. My Barbara says everything is too soon to tell what the damage is, and she took more stitches out, also the nuerologist says my brain is molasses. I didn’t really need to pay the co-pay to hear this. I KNOW. All meds are the same, he didn’t change anything, for which I am thankful. He was very kind and said if I don’t have a seizure in the next 22 days, (Imightbecountingtheminutes), I can drive! Weeeee! The concern is numb feet. So I will have to figure something out in learning how to put pressure on the pedal, or something like that. The truth is my right foot was numb after the 1st surgery, and I was ok to drive. It’s not like running. Watch out people. 17 months of no driving, and I am ready to giddy-up with my mommy wagon.
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Rocket Randomness
This week is VBS for our church. My sweet faithful friend has offered to wrangle up my people, all with her brood and cart them all to church. {without me} True love right there. This last year she has taught me so much about friendship and sisterhood, and being real and I love her. Smooches M. I have been blessed with the best of the best in the friendship department, and ya know what? I am grateful. As a lonely 7th and 8th grader who had no friends and bad hair, I still remember the painful void and insecurity middle school brought with all it’s big girl problems and did I mention? no friends. Today I stand a whole lot older, {with bad hair}, but my heart is full, and I see had God not given me the stark contrast I would not see the blessing of friendship He has graciously poured out. You people who love us, encourage us and care for us…you have given us such an incredible gift. Thank you for your friendship and care. It will be a great day when I am able to reciprocate and do the same for you. (more…)
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longest run-on post ever…
Remember all the talk and prayer needed for a functioning shunt? Here’s why we needed that miracle to work:
Cat scan #9see the flat titanium plate on top? Cool beans.
Cat scan/ MRI #10 (a week later)
Yep. The little dent/ bump on top was the exit route for the CSF. The black space on top of my brain is fluid smashing my brain. Not like I have that much to work with anyway, but, ya know. I would like to salvage whatever brain power I have.
Back to why I posted- results!!! You all have so kind to ask. The very expensive nuclear 4 day test I took last week, (I pray we don’t have to pay for), showed the shunt IS working!!! No more leaky-leaky. Thank you praying friends! Wow. Overcome with gratitude. What a perfectly answered prayer. This means I am home for good, Lord willing. The next big hurdle is figuring out what we can do with this remnant: