Author: Michelle White

  • Sweet Friends

    It’s been foreverrrrr. I miss you all! I miss writing. 

    Wow 2020. Wow. Excited to never see you again! It’s been too long. I have lots of excuses. The main one being I can’t think straight. Talk straight. Finish thoughts. You are welcome. Writing this post felt like mental olympics and probably confirms these admissions. Hold the bar low people. 

    So much has happened! I keep looking in the clouds for Jesus, because if he was coming soon before, He has to be hovering. This world. It breaks my heart in a thousand ways. There have been so many blog posts I (PRAISE GOD) didn’t publish. In re-reading I have come to realize maybe I can be a little judgmental. And right. And a sometimes wrong on things. More than anything, I realized chirping about political climate, corruption, or oppression is divisive and that’s really not what this blog is for. That’s not what glorifies God. 

    I have always been an open book and I regret not sharing with you all the many beautiful things God has given us through this past year,  trials included. 

    The c word has been {enter any negative or hateful descriptive} for so many people. It’s caused unbearable pain and loss for too many, undeserved blessings for some and a universal opportunity to grow in endurance. Or the desire to pound sand. 

    So many of you are sweetly checking in on me, showing myself and family so much love, please know I appreciate you! 

    Time for an update. 

    This last year has been good and hard. So many more blessings than trials. And even if it was not this way, God is still and always good. 

    Chad is amazing. Working from home this past year was a gift, (for me at least), and it was eye opening to see all that he does and accomplishes in a day-his work ethic is as consistent as his good attitude. He is my everything and I will never stop praising God for his life and heart. 

    Our spawn are thriving and truly my treasures. They don’t laugh to my face when I get frustrated trying to heat things up in the refrigerator or ask the same question for the 87th time. They are patient when I can’t find words. Their telepathy skills are on point. 

    We have been given countless provisions and have amazing family and friends that God has gifted us. I could ball my eyes out right now. I don’t know why they/ you all love on me? I smell questionable most days, I forget everything and I can never reciprocate. Another great resume builder: unreliable and again, hate the whole shower-fix my face-eyebrow hunt and pluck-blow dry- hate the style-redo said style-painting of the mug…oh wait, I forgot to shave and deep life decisions ensue. Do I go back?! 

    Get me? 

    Back to brain. 

    January 2020 was the last big surgery. Tumor doubled down and grew again. 

    July of 2020 gamma knife-radio surgery on a small part of the tumor-that did not work. (Clearly) 

    My MRI showed more growth back in November, and as I was not a candidate for another surgery, they decided to try and off label chemo pill. (For another cancer). The 1st 3 months were gold. No growth. The next 6…not so much. What can I say? It’s ambitious. 

    The tumor is aggressive and has continued to grow despite the many efforts to axe that sucker. My MRI last month shows edema-brain is swelling. Justifies the kind of headaches that make you do very unethical things to fix. No balance, more stupid. 

    I am super fun and pretty worthless 70% of the time. 

    But God. 

    God is who He says He is; gracious and faithful-full of mercy. Out of nowhere comes 1-3 days of easy, and for those days I am forever grateful. 

    Because we have exhausted all options, the surgery they said they would not do is scheduled for Tuesday, August 31st at 1:30. 

    It is high risk. We had a sobering difficult conversation with my doctor. 

    I am in denial a little lot a bit. This is the 7th surgery. Each successive surgery holds higher percentages of not great things happening. 

    If you ask me how I am feeling, I will tell you I am content, my heart is at peace. Fighting looking behind the curtain truthfully. What is holding Chad and I together is our trust that God has us in eternity no. matter. what. What and who does God say He is? This is where I go when I begin to walk the dark path of nonsense. I focus on what is true, and who I have entrusted my forever to. 

    He is the God of creation, salvation, and love. 

    He has held us this entire time and I know His timing and plan is perfect. He is incapable of making mistakes. While I am of course not looking forward to the recovery, the only place I desire to be is in His perfect will. 

    Friends, please pray for us?

    Specifically that: 

    -God would be glorified in every step of the process. He would use this for good!

    -God would guide the surgeons’ hands, give wisdom, and enable him to remove a significant amount of tumor safely. i.e. a successful surgery

    -my vision would be protected

    -God will gift us another blessed recovery and restore me

    -God would empower Chad and our parents to take on all that comes with these recoveries. 

    -The impact on others lives is minimal 

    And lastly….I am just going to say it. Please pray God heals me again and brings me through another surgery safely?

    I love you all. So thankful for each and every one of your souls. 

    I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.

    John 16:33

    In His Love,

    Michelle

    oh and here is a visual of this beast.

    Technology is rad.

  • Guest Post 6/21/14

    Guest Post
    I arrived in the ICU this morning to find Michelle, much in the same condition she has been in since Wednesday evening. A little background, before I get to the main reason for this post. She had a temporary (5-6 day) lumbar drain put into her spine, and a running stitch into her original incision. The drain (10 cc/ml) every hour, helps remove the pocket of fluid that sits on top of her head. The stitch will hopefully tie her incision tight, and combined with the relieved pressure allow her wound time to heal/seal together, so she doesn’t leak anymore CSF.  They plan to turn the drain off on Monday.  Let her rest for 24-48 hours, retest the shunt, and see if there is any leaking. While I am optimistic there wouldn’t be leaking on Tuesday, it’s the days after that (usually at home and following a nights’ sleep) that are the true test.
    I digress, she is not feeling well at all.  The draining causes her extreme headaches, and this time it is coupled with nausea. She is pretty much sedated for most of the day without much wherewithal to who is around. (more…)

  • Home… take #43

    I am HOME! With all your prayers, God’s good hand, and a (partially) functioning brain later, We
    made it. I have a whole lot less hair, a few more scars, and my babies and husband are within arms reach. I made it out protected and on my knees with gratitude for you all. Thank you all for praying without ceasing. Do you know how I know your many prayers went up?  Every so often I am struck with {literally} unbearable pain. It might last one minute, it might last a couple hours, at anytime in between meds….and I feel it. I feel the dark deep. It hurts, and I can’t physically carry the burden, the raging pain. Jesus is quick to remind me He is here, His yoke is light. And I am able to feel and see what truly resting it all on Him is. It doesn’t remove the pain. Or remove the fear in pain, however, the peace that follows these moments of surrender are not of this world. Those prayers….they keep me upright. They keep me smiling and able to love on and cuddle my littles. They are keeping me here. Many of you who read this, I have never met. Please give your babies extra love, encourage one another by continuing to pray for each other, and don’t ever forget the gift we have been given in this set of answered prayers. (more…)

  • longest run-on post ever…

    longest run-on post ever…

    Remember all the talk and prayer needed for a functioning shunt? Here’s why we needed that miracle to work:

    Cat scan #9
    see the flat titanium plate on top? Cool beans.
     Cat scan/ MRI #10 (a week later)


    Yep. The little dent/ bump on top was the exit route for the CSF. The black space on top of my brain is fluid smashing my brain. Not like I have that much to work with anyway, but, ya know. I would like to salvage whatever brain power I have.
    Back to why I posted- results!!! You all have so kind to ask. The very expensive nuclear 4 day test I took last week, (I pray we don’t have to pay for), showed the shunt IS working!!! No more leaky-leaky. Thank you praying friends! Wow. Overcome with gratitude. What a perfectly answered prayer. This means I am home for good, Lord willing. The next big hurdle is figuring out what we can do with this remnant:

    (more…)

  • traditions

    traditions

    Now that the celebration of our Savior’s birth has passed, along with buying and wrapping of too many gifts to count, we are actually enjoying each other. I wish I could wear the “success” hat and say we have mastered perfectly savoring and appreciating Christmas time, but I will keep it real. I failed. I yelled and wrestled with my kids each night to sit still while I read the Jesse Tree, one of our new Christmas traditions. My dear friend made us ALL the ornaments to match and wrapped them. She is amazing. They learned to sit without squirming by December 23rd.

    (more…)