Ain't No Supermom

Author: Michelle White

  • Updates for both

    Helllloooo!

    I just cannot thank you all enough for all of your prayers, for myself and Rhonda. Going to give some incredible, God ordained updates on us both.

    Rhonda:

    She is incredible. So brave! They are sitting her up for a couple minutes and she stood, assisted, for a minute.  She looks so much better than a couple days ago. Closer to her old self. She does have tough road ahead, and our family covets your prayers for a full recovery, mental and physical.

    Myself:

    10 days ago, I met with an additional surgeon for a consult for surgery-if there was anything he could do. Never hurts to get a 5th consult. 😉

    He walked into the room, completely confident. Big perfect smile. It is in Newport Beach people. He said he can resect close to 90% of it, if my sagittal sinus, (where my clot/ occlusion is), is completely blocked. If not, a big fat no. I made it home Wednesday morning and had the CT’s Thursday. I needed him to read ASAP so that he would be able to make a determination before my deadline to change insurance. This morning, I received a call…

    It is BLOCKED  completely.

    Happy tears! He wants to do the surgery as soon as possible, which would be January-when new insurance is takes effect. My heart is so thankful for the clear path God has blessed us with. He will go through a different part of my skull so that we don’t have to deal with the leaky incision debacle all over again. This, in addition to him not disassembling the titanium mesh that is covering a third of my skull, makes the surgery what I will call hopeful! I am so thankful. So so thankful. Thank you for lifting Rhonda and myself up to our Almighty.

     

     

  • Guest Post 6/21/14

    Guest Post
    I arrived in the ICU this morning to find Michelle, much in the same condition she has been in since Wednesday evening. A little background, before I get to the main reason for this post. She had a temporary (5-6 day) lumbar drain put into her spine, and a running stitch into her original incision. The drain (10 cc/ml) every hour, helps remove the pocket of fluid that sits on top of her head. The stitch will hopefully tie her incision tight, and combined with the relieved pressure allow her wound time to heal/seal together, so she doesn’t leak anymore CSF.  They plan to turn the drain off on Monday.  Let her rest for 24-48 hours, retest the shunt, and see if there is any leaking. While I am optimistic there wouldn’t be leaking on Tuesday, it’s the days after that (usually at home and following a nights’ sleep) that are the true test.
    I digress, she is not feeling well at all.  The draining causes her extreme headaches, and this time it is coupled with nausea. She is pretty much sedated for most of the day without much wherewithal to who is around. (more…)

  • Home… take #43

    I am HOME! With all your prayers, God’s good hand, and a (partially) functioning brain later, We
    made it. I have a whole lot less hair, a few more scars, and my babies and husband are within arms reach. I made it out protected and on my knees with gratitude for you all. Thank you all for praying without ceasing. Do you know how I know your many prayers went up?  Every so often I am struck with {literally} unbearable pain. It might last one minute, it might last a couple hours, at anytime in between meds….and I feel it. I feel the dark deep. It hurts, and I can’t physically carry the burden, the raging pain. Jesus is quick to remind me He is here, His yoke is light. And I am able to feel and see what truly resting it all on Him is. It doesn’t remove the pain. Or remove the fear in pain, however, the peace that follows these moments of surrender are not of this world. Those prayers….they keep me upright. They keep me smiling and able to love on and cuddle my littles. They are keeping me here. Many of you who read this, I have never met. Please give your babies extra love, encourage one another by continuing to pray for each other, and don’t ever forget the gift we have been given in this set of answered prayers. (more…)

  • longest run-on post ever…

    longest run-on post ever…

    Remember all the talk and prayer needed for a functioning shunt? Here’s why we needed that miracle to work:

    Cat scan #9
    see the flat titanium plate on top? Cool beans.
     Cat scan/ MRI #10 (a week later)


    Yep. The little dent/ bump on top was the exit route for the CSF. The black space on top of my brain is fluid smashing my brain. Not like I have that much to work with anyway, but, ya know. I would like to salvage whatever brain power I have.
    Back to why I posted- results!!! You all have so kind to ask. The very expensive nuclear 4 day test I took last week, (I pray we don’t have to pay for), showed the shunt IS working!!! No more leaky-leaky. Thank you praying friends! Wow. Overcome with gratitude. What a perfectly answered prayer. This means I am home for good, Lord willing. The next big hurdle is figuring out what we can do with this remnant:

    (more…)

  • traditions

    traditions

    Now that the celebration of our Savior’s birth has passed, along with buying and wrapping of too many gifts to count, we are actually enjoying each other. I wish I could wear the “success” hat and say we have mastered perfectly savoring and appreciating Christmas time, but I will keep it real. I failed. I yelled and wrestled with my kids each night to sit still while I read the Jesse Tree, one of our new Christmas traditions. My dear friend made us ALL the ornaments to match and wrapped them. She is amazing. They learned to sit without squirming by December 23rd.

    (more…)